January and February

So I have tried to write a post about January and February about 3 times now! It is always a novel and sounds so depressing, so forget all of that! Here is the long and the short of it...I watched my daughter have a seizure for 22 terrifying moments, spent 12 hours talking to doctors and "sleeping" in the hospital hoping she wouldn't have another, was told she had a seizure disorder and was sent home with a rescue medication, Blake is now afraid to sleep in her crib so sleeps with us most of the time, I don't sleep for more than 2 hours for 3 weeks straight because I am so worried about her, Rob worries about his mental patient wife and if Blakes will have another seizure, finally we see a neurologist 3 weeks later to have an EEG done, and her diagnosis was that the seizure was just a fluke and is likely not to ever happen again. This was obviously the most wonderful news of the whole ordeal and we know it was a result of much fasting and prayers on Blakeley's behalf.

A few thoughts...watching my child have a seizure was easily the scariest thing I have ever witnessed and I only had to watch it once. I have learned that for some people this is a frequent occurrence and I can't imagine a life like that. It is so sad and scary and you can't do anything about it you just have to let it happen! So I have a new found empathy for anybody who has to deal with this on a regular basis. I am so grateful for the power of fasting and prayer and for wonderful family members who prayed and worried with us. I have a lot to be grateful for, when Blake was having her seizure and lost the ability to talk to me I thought for a moment I would never get to hear her talk or make me laugh again. How grateful I was when she woke up the next morning complaining about her IV and that she wanted to go home. Believe me I felt bad for her but hearing her talk was music to my ears! So this is still kind of a novel but much shorter than the last 3 attempts :)

Blakes had to go down to Primary's for her EEG. That is a test where they put electrodes all over their head and measure their brain waves to make look for any abnormalities. She had to be sleep deprived for the test. We had to put her to bed 2 hours later than normal and wake her up in the morning 2 hours earlier than normal. Fun! Then we had to keep her awake for the drive to Primary's, more fun!! My mom had a great idea to go to SLC early and play before her test to keep her awake. It worked out great, I rode in the back with her to keep her from falling asleep. We took her to Discovery Gateway and to lunch before her test. Here are a few pictures from Discovery Gateway, it was a super fun place and Blakes loved it!

Blakeley and Rob on TV! :)

Blakeley looks darling in the above picture

and Rob looks darling in the one below

If only we could combine the two!

After Discovery Gateway we went to lunch and then to Primary's. We had to have the EEG done first, poor Blakes was so traumatized by all of her recent hospital/Dr visits she started crying the minute we went back to have the test done. She cried the whole time the put the electrodes on her head, then they wrapped her whole head in gauze she had the cutest little "turban"on! But she was so upset about it we never got a picture. After they do all this trauma then they say okay she needs to go to sleep...um okay if only it was that easy! She just laid there in my arms crying and crying that she wanted to go home and that she wanted the turban off! Poor thing, they brought in a little musical crib toy that she watched and thank heavens eventually fell asleep. I was so glad cause she was so tired. However they only let her sleep for 10 min then they came in a flashed all of these lights in her eyes and told us to wake her up! Can you say Cruel!!! So she was SO mad when we woke her up. We took all of the stuff off and washed her hair. Then she got to go play for a while until we saw the Neurologist!

Here she is with Daddy waiting for the Doctor

The Neurologist was so wonderful with us and with Blakeley. I had 2 pages full of questions for her and she patiently let me ask her all of them! She checked Blakeley out and tested her development by asking her a ton of questions. Blake made us so proud by answering them all correctly, the doctor was so impressed with her! We didn't find out the results of everything until the next evening but again we are just so grateful that none of this effected her development and that she doesn't have a seizure disorder! Being at Primary Neurology clinic really helps you realize how lucky you are to have a healthy child! We have also been so touched by all of the help, support, and love we had while going through this little experience. We are so grateful for our wonderful family and friends!

So that post was still a novel but oh well, it is what it is!